Understanding Endometriosis: Awareness Month

March is Endometriosis Awareness Month, a time dedicated to increasing understanding of a condition that affects millions of women worldwide. Endometriosis occurs when tissue similar to the lining of the uterus grows outside the uterine cavity, leading to various symptoms and potential complications.

What is Endometriosis?

Endometriosis is a chronic condition where endometrial-like tissue is found outside the uterus, commonly on the ovaries, fallopian tubes, and the lining of the pelvic cavity. This misplaced tissue continues to act as it would inside the uterus—thickening, breaking down, and bleeding with each menstrual cycle. However, because this blood has no way to exit the body, it becomes trapped, leading to inflammation, cyst formation, and scar tissue development.

Common Symptoms

The symptoms of endometriosis can vary but often include:

• Pelvic Pain: This is the most common symptom, often associated with menstrual periods but can also occur between cycles.
• Dysmenorrhea: Severe menstrual cramps that may radiate to the lower back and abdomen.
• Dyspareunia: Pain during or after sexual intercourse.
• Bowel and Urinary Issues: Pain during bowel movements or urination, especially during menstruation.
• Infertility: Endometriosis is sometimes first diagnosed in those seeking treatment for infertility.
• Other Symptoms: Fatigue, diarrhea, constipation, bloating, and nausea, particularly during menstrual periods.

It's important to note that the severity of symptoms doesn't always correlate with the extent of the condition; some women with mild endometriosis may experience severe symptoms, while others with advanced endometriosis might have little to no symptoms.

Helpful Resources on Endometriosis and Menstrual Disorders

For those seeking to deepen their understanding of endometriosis and menstrual disorders, two notable resources are:

• "Demystifying Endometriosis": This comprehensive text is highly illustrated with clinical photographs, diagrams, tables, and detailed references to enhance learning.
• "When Something Is Wrong...Understanding Menstrual Disorders" by Doris Murimi: This book serves as an informative read and a great conversation starter for adolescents, parents, and guardians on the subject of endometriosis and other menstrual disorders. Through true stories, readers are guided through the subject matter in an engaging manner.

Endometriosis Support Organizations in Kenya

Kenya has several organizations dedicated to supporting individuals affected by endometriosis. Two key organizations are:

• Endo Sisters East Africa Foundation: Founded by Doris Murimi, an advocate who personally battled endometriosis for over 30 years before receiving a diagnosis, this foundation focuses on promoting early diagnosis and providing support to those living with endometriosis and other menstrual disorders. They are also known for the #YellowNailsMovement campaign, which raises awareness about the condition.
• Endometriosis Foundation of Kenya (EFK): This organization focuses on raising awareness, offering support, and advocating for improved healthcare for individuals suffering from endometriosis in Kenya.

Endometriosis is a complex and often misunderstood condition that can significantly impact a woman's quality of life. Increasing awareness, promoting early diagnosis, and providing access to comprehensive resources are crucial steps toward better management and support for those affected. By spreading knowledge and supporting initiatives such as those led by Endo Sisters East Africa Foundation and the Endometriosis Foundation of Kenya, we can contribute to a future where women receive timely diagnoses and the care they deserve.